The future

As this chapter has highlighted, collaboration is key for successful and productive activities. Equal partnerships between patient organisations and also with professionals and policy-makers must be built and sustained in order to ensure that messages are clear and consistent, and to allow for coordination and better resource use.

Other key priorities for the future of European respiratory patient organisations include:

  • Improving the image and standing of patient organisations
     
  • As this chapter has highlighted, collaboration is key for successful and productive activities. Equal partnerships between patient organisations and also with professionals and policy-makers must be built and sustained in order to ensure that messages are clear and consistent, and to allow for coordination and better resource use. Other key priorities for the future of European respiratory patient organisations include:
  • Developing innovative methods to ensure an increase in funding, including donations, fundraising, corporate giving and sales. This will also lead to increased support for research.

  • Ensuring that patient information and care is based on guidelines and providing it where it is needed most, often at the point of diagnosis or on discharge from hospital.

  • Addressing health inequalities and health literacy to ensure that people across Europe are able to obtain the same information and access resources that enable them to better manage their condition.

  • Ensuring that patients have more input into research and healthcare at local, national and European level.

  • Ensuring that care for chronic respiratory diseases looks to new technologies (e.g. tele-health) and where appropriate alternative treatments.

  • All the patient organisations consulted for this chapter have ambitious and impressive plans for the coming 5–10 years. We all look forward to a future where all patients are supported and empowered, and able to contribute to a brighter and better future for themselves and for lung health.

See the entire Patient organisations and the European Lung Foundation Chapter